Wednesday, July 13, 2011

Parents of babies and children with Cerebral palsy?

I just found out today my 7 month old baby boy has cerebral palsy . The neurologist used the word ''encephalomalacia'' . She showed me pictures of his MRI and both sides of his brain had one part that looks ''abnormal''. She went on to say that that part of his brain is what controls motor skills , speech , and sensation . My baby had a HSV 2 infection that caused meningitis and he had seizures . He was in the hospital for a month & i was there by his side ALL the way through . Of course he's going to start physical therapy , occupational therapy , and he's already registered in Early intervention services . The problem is the neurologist couldn't tell me how bad his cerebral palsy is and whether he would be able to walk , talk or hold his head up . He's 7 months old , he cant hold his head up , he wont look at people , wont pick up toys or kick and smiles every once in a while , he doesn't coo or giggle , the only time he' would bear weight on his legs is when hes upset & crying & he can sit up but he cant hold his head up so he falls forward or back . He has made an improvement with more muscle control in his mouth so he doesn't leak milk when he drinks anymore. I just want to know what to expect im sorry for the long story but i cant even eat right now and i have unanswered questions. Did you have a child who could bear weight on his legs and still ended up in a wheelchair ? Can CP cause blindness ? Will my child ever hold his head up , and is it possible someone can go there WHOLE life without being able to hold thier head up ? what did you do to help them ? The PT evaluated him last week and said hes still between newborn and 2 month stage . Hes still very small for his age ( hes like 15 pounds ) Can someone give me and my baby some insight ?? to make it worse my husband left in march for a 12 month tour in Afghanistan :( I dont want to tell him cause i dont want him doing something stupid .

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